 |
 |
 |
 |
 |
 |
 |
 |
 |
 |
 |
 |
 |
 |
|
||||||||||||||
|
Results in General: |
These
general results are admittedly impressionistic and based on 6 months follow-ups
after initial purchase dates of the Clean Kid Manual and my consultations.
Please
continue on to the next section below and see actual parents' comments
to the exclusive Clean Kid Manual forum which is offered on its purchase. I
cannot reliably estimate the number of relapses that may occur with this
problem because of inadequate returns on follow up requests. I suspect
a figure of around 50 percent. Relapses are disappointing, but THEY ARE
NOT FAILURES! A relapse says first of all that our protocol succeeded
and actually proves it will work again, probably even faster. Why relapses
occur is complex, but easily understood. The “training” may
have been terminated too early before the response was thoroughly conditioned
or “over-learned” or the enlarged colon has not recovered
sufficiently. Some children have very sensitive or wired GI tracts that
respond to changes in routine—e.g., going camping with strange bathrooms
or lots of excitement; getting out of school for the summer with lots
of unstructured time; returning to school in the fall; adding extracurricular
activities; divorce; family upset over some event, etc., etc. You may
even observe difficulties in voiding regularly for yourself when you go
on vacation or certain circumstances. Sympathize with your child and return
to our treatment approach whenever it is needed. |
A Sample of Recent User Comments Shared On The CKM Email Forum: Background: Purchasers of the Clean Kid Manual (CKM) are invited to join an exclusive email forum open only to them and interested professionals approved by myself (DrC). Parents must look for the loose insert at the front of their manual with instructions on how to join the forum. The forum is a "clinical laboratory" to ferret out the strengths and weakness of the Soiling Solution's Protocol in actual usage which may be addressed in future editions of the manual. The archives of the forum have become very, very large as the list is quite active. Much more active than any other encopresis list on the internet! The parents are all in it together as they all have the same protocol to follow. I will attempt to select out a representative selection of recent inputs to the forum. You will see the successes and the difficulties that the parents experience. I will add inputs and delete others on occasion to keep them more "fresh". |
| * * * * From:
P.
Hey, my name is P and my son N started having problems in April after
my husband was critically ill in the hospital. Because he was six, I wasn't
asking if he'd pooped every day. my kids were staying with different people,
eating alot of fast food, and not at home to use their own bathroom. By
the time I figured out that he couldn't help it, it had gotten bad. At
first I thought he washn't wiping well. When I got him to the pediatrician,
they found that he was completely stopped up and that he not only had
encopresis, but megacolon. We treated and treated, then went to a gastro
Dr. We've been on Miralax and Milk of Mag and been referred to a specialist
at xxxxx in xxxxx. in the meantime, I found this website. We have put
him back on a regular diet, but a healthy one. We quit all of the laxatives
and started the program six days ago. He has gone from eighteen accidents
a day to none. He has had only one since day two. We have even had a couple
of days where he went on his own. This is such an answer to a prayer.
He was cleaning himself and changing clothes himself at school. We rarely
were going anywhere. This works. Suppositories and enemas are tough, but
they do get easier and the child learns that if they can learn to go,
they won't have to have them. The stool softeners he recommends are helpful.
I will be praying for all of you and your families. it affects the dynamics
of everyone in the house. Merry Christmas. I pray that through the business
we stay faithful to the program and by the time school starts back, our
children have relief. Thank God for the Dr. and his wisdom. |
* * * * To:
soilingsolutions@xxxxxxxxxxxxxx |
| * * * * To:
<soilingsolutions@xxxxxxxxxxxxxxx> Hi everyone. I’m new to the group and very anxiously awaiting my book to start this program. My daughter is 4 ½ and we’ve been struggling with this problem for not quite a year. It’s comforting to know that we aren’t the only parents going through this! We’re kind of on our own with this program since most of our family members seem to think that these are just accidents of a kid who isn’t all the way potty trained (um, she’s been potty trained since 3) or that we should just “wait it out” and she’ll grow out of it. I can’t imagine having to send my daughter to school with this problem . . . preschool is bad enough. We have tried many over the counter remedies that haven’t worked, and we are now using Miralax. I thought for sure this would help with the constipation. Now we have smaller bowel movements in addition to the leaking (sigh). We have attempted an enema on our own with her once and she acted like we were killing her. I’m
thankful to have the support of this group to help us get through starting
the program. I just KNOW it’s going to work. Thanks everyone!! If a new parent requests access to the forum upon ordering their manual in their order notes at the store or by phone I enroll them early so that they can review the extensive archives to help prepare them. This was such a case and her comments are typical for many parents seeking out my manual. The Forum also helps, in many instances, to eliminate a need for my consultation services which may be too costly for some families. DrC. |
* * * * To:
soilingsolutions@xxxxxxxxxxxxxxx Here
is the final closing note from M: |
* * * * To:
<soilingsolutions@xxxxxxxxxxxxxxx> This
note above is a typical response to a note from another parent which is
shown below: |
* * * * To:
<soilingsolutions@xxxxxxxxxxxxxxx>
Even though we've had a few regressions this program has been a Huge blessing.
My husband and I were just talking about that. My husband B. said isn't
it awsome J. isn't on the miralax anymore? I have said before that miralax
is a bandaid for the problem but not a cure and this program "fixes"
the problem. Yes, you have to stay on top of things and sometimes it's
hard but don't give up! Stick to it and you will reap the rewards. If
your child regresses just get back on the program and things will get
back to normal. My son is a happy, much more energetic boy and has even
grown a lot since starting this program. |
* * * * To:
<soilingsolutions@xxxxxxxxxxxxxxx> All the best to you and your family on this journey. Good luck! M. |
* * * * To:
soilingsolutions@xxxxxxxxxxxxxxx J.-
Follow the protocol! It works My son was on miralax (he is 6 now) for
almost two years with no success - i tried soiling solutions and in 2
months of vigilant following he is now cured since this past August and
so proud of himself. I would tell him the enema is to help him to help
him stay clean and fresh and no smelly underwears and he resisted but
it is amazing I cant say enough good things about this program. It took
my son and myself from utter depression to a normal life for him. Please
try it and follow it exactly. Good Luck |
* * * * To:
soilingsolutions@xxxxxxxxxx I've
been dealing with my son on my own for so long (he was on regular enemas
at 3 1/2; and he's 8 now). At this point in my life I also take care of
my father, however he doesn't want to get involved in this. It's hard
when it's just you doing it...I know. But I found that I had to have a
long talk with my son, and prepare him for every part of it. I told him
that I really needed his cooperation for it. The first enema I did, he
fought and fought hard (he's 8, and for a young boy, I found he's pretty
strong); and it upset me that I had to try to hold him down while not
hurting him to do it. But he wasn't getting poop out any other way. Last
night was the second night of having to do the enema with this program...he
still fought, but not as hard. I've found that I spend a lot of time each
night trying to talk him through it so he won't fight as hard. It won't
be easy, but from what I've heard from other parent's here, it does get
easier. The hardest part is beginning it, and keeping the consistency.
I wish you luck with it.
|
* * * * soilingsolutions@xxxxxxx M. |
* * * * S from France on 12/15/2007 I
also want to echo what has been written here. I was at my wit's end when
I found SS and it changed our lives.A., who is now 9, hasn't had more
than 2 or 3 accidents since we started the program in April and all of
those right at the beginning. I consider him totally cured and it is ALL
thanks to the SS program. Orders
for the manual are now coming in from around the world. This mother like
many stay around for a while to help the newbies. The internet has been
a fantastic communications tool and makes my program more attainable for
all and relatively inexpensive even without insurance. DrC. |
* * * * Received on 12/15/2007 We
had our first big milestone yesterday! My 7 yo daughter is on the program.
We've been doing it now for almost 2 weeks. She hasn't had an accident
in 9 days, but up until yesterday she has needed at least the suppository
to go and usually we went all the way to the enema. Yesterday she went
during the 2nd sit, all on her own!!! Woohoo!!! I was definitely doing
the happy dance! And I am so proud of her in how she has handled all of
this. She tends to be very fearful of anything even remotely invasive,
and yet she hasn't fought me on this even once. Sometimes she needs a
minute or two to "get ready", but she has been compliant from
the beginning. Today we are going out to buy some new pretty panties,
and this weekend we are going to go do something to celebrate...just the
two of us (with 6 kids, that is a real treat!). This
exclusive CKM parents forum can be quite active. If only pediatricians
would look at these spontaneous exchanges at the archives! They could
not help but be persuaded about the power of the SS program. If your pediatrician
or gastro doc is interested I can give them access to the archives--they
probably cannot afford the time to be on the actual forum because the
traffic can get to be quite heavy between the parents. DrC. |
* * * * Received
on 12/21/2007. I'm not sure if you remember me but I called you over a month ago to order your manual for an 8 year old client I am seeing with encopresis. I'm a LCSW in xxxxx and had been seeing my client for almost 2 months before calling you. I just wanted you to know that I think your manual is great! My client made more progress in one week with your manual than the 2 months with the behavioral interventions I recommended. The family and the little boy are so happy and appreciative that they asked me to tell you that you have changed their lives. I have told my colleagues about your website and manual and have strongly recommended that they purchase a copy for their own practice. My client's pediatrician asked for your website and contact information. I have ended treatment with the client and I can't thank you enough. Happy
Holidays!! Parents have been the major conduit for spreading my protocol. Talks at conferences or my writing have not had much impact. Now word is getting out to the professionals who actually employ my protocol and I hope that they will also have an impact. DrC. |
* * * * T&J
Sent: Dec 29, 2007 2:11 PM Our son is 9 years old and had never achieved "bowel control". We took him to our family doctor, to a pediatric gastroenterologist about an hour away, and finally to a specialist in a big city hospital 4 hours from here. All they could do was run a bunch of tests, tell us that he was chronically constipated, and put him on Miralax for long periods of time. Of course, the Miralax kept him going, but it didn't help his ability to stay clean, it just made matters worse. One of the specialists finally said that the only solution for him was to do surgery which would involve putting a stent into his colon so that we could give him direct medication and could clean out his system every night. There was no way we were going to do that to an active 9-year-old boy! So we just kept on praying that God would show us some other solution to this problem. A few months ago, after we received the final word from the doctors, a friend found your website. We were amazed to learn that our child was not alone! We were also intrigued by the idea that his problem wasn't lack of control, but too much of a good thing. We got your materials, read up, bought the supplies, and attempted to start with our son. He refused to have anything to do with it. He didn't want to talk to us or have us do anything to help him. He thought that his problem could not be solved and he was too discouraged to try anything new. WE told him that other kids his age had the same poblem and they had been able to overcome it, but he didn't really believe us. We followed your advice and didn't try to force him, although I doubted that he would ever come to us and say he was ready. But we kept on praying and waiting. After a few weeks he had an embarrassing incident at school and came to me in tears saying he wanted to do something about "his problem". So we started "Clean Kid". The very first time he sat on the toilet he was able to go. It has been 2 weeks and he hasn't soiled himself a single time! We've never had to go past the first sit with him. Because of that, he has been able to do this almost entirely by himself. All we do is tell him that it's time to sit quietly, then send him to the bathroom. He's proud of being able to do this by himself. We can hardly believe the change! What an incredible Christmas present for all of us! You have my permission to put this testimonial on your website if you would like to. Just let me know so I can look it up. Sincerely, J H. This report is important because it illustrates how extreme a medical intervention can become for what is basically a functional disorder when the dominant "top down" or oral approachs do not work after repeated trials. This case illustrates how effective a manual-guided, "cookbook approach" can be where all the proper treatment elements are carefully explained, read and reread, and other parents are available in an email forum for support and advice. Most parents will not need a paid consult with me. This outcome was of the "miracle" variety, but only because it was in the context of the total protocol which the parents (and, in this case, the child as well) were fully committed to carrying it out while knowing what was required with the "bottoms up" approach. Again, the SS protocol does not depend on a punishment or "threat" paradigm (that would not work), rather it conditions the urge signals and proper release mechanisms for successful voiding on the child's own newly developed competence for daily BMs. Suppositories and enemas when properly used and timed establishes the appropriate times and conditions for successful BM's. Soiling also stops much earlier when the SS protocol is used. The parents will have to remain very alert for any signs of relapse and be prepared to go "all the way" if that should become necessary. But, now the parents recognize the possibility of that necessity and are prepared and encouraged to do just that. DrC. |
* * * * Received
on 01/22/2008 Hello
everyone. Immediately following is a later response to a parent who responded to K's email. Note that these exchanges are very spontaneous and quick over the exclusive CKM Forum and more will surely follow, but I will truncate it all here. DrC. Thank-you
J! I'm happy to encourage anyone,i struggled and hated this program at
first, but now im so happy i used it! K. |
* * * * Received
on Friday,
January 25, 2008 11:05:48 AM I
believe that it is significant that NR is a pediatric nurse and had to
face so much frustration from within her own field. However, I have recently
received an order from another nurse at a University Medical Center who's
Pediatric Section is encouraging her to use the SS Protocol. Nurses jokingly
refer to encopresis as the "Nurses Curse" because they so frequently
find other nurses with the same issue! DrC. |
* * * * Received:
Tuesday, January 29, 2008 7:13:02 PM Dr. Collins, I recently read the testimonial of NR and thought I would share our results. I came upon your website through a friend of a friend that had ordered and successfully used your manual. I read your website and testimonials and felt hope for the first time. I even contacted you with some questions before I ordered the manual and you (not a secretary or receptionist) answered all of my questions! I ordered the Clean Kid Manual and read through it before I started. Our son had been suffereing with encopresis undiagnosed since he was 8 months old. I had him tested and to the doctors more times than I can remember. Once I found out about your program I did inform my pediatrician and she was very supportive and also offered me behavioral psychologist's # for additional help. We started in October 2007 and now we are to the point where our sons tells us when he needs to go and enjoys privacy while going and calls us when he is done! If you would have told me a year ago that this would have happened I would not have believed you. It took us about a month with supppositories and luckily never had to use the enema. Our son did show a lot of resistance and proved to us that it was a control issue. We did begin using a fiber supplement(Benefiber worked best for us) and increased fluids (orange juice). This combination helped keep him regular even though he is still a picky eater. I do have to say that of the foods he does eat he eats way more than he ever did and is willing to try new foods. The friend that called me to tell me about her friend that had gone through this and used your manual can not believe the difference in our son. Even her husband has commented on the change in demeanor in our son. He is sooooo much more outgoing, playful, and social. For all of these comments our family will be gratefull to you forever. NR was right when she said God puts every person here for a reason and we are so blessed to have found you! Thank You.....Thank You......Thank You! For anyone that is considering starting the Clean Kid Manual I would say that if you follow CKM you will be amazed! Thank You & God Bless You! CF & Family The child here was 3 years old at the beginning of treatment and I am now more comfortable with intervention at this early age as other parents have reported similar success at this age. This mother also commented on my availability which generally remains true to this day since I have left an office-based practice to devote full time to this website and extending the CKM protocol. The positive changes in behavior that CF noted in her son following treatment is fairly typical and continues to lay to rest earlier, silly, psychoanalytic based charges that my interventions were shallow and not treating a true deep underlying psychological cause. Note that the pediatrician here was open to the CKM protocol. I seek to work with physicians as much as possible and offer free consultations to them. DrC. |
* * * * Received:
02/06/2008 If you are not comfortable bringing this program to your doctor, then I would encourage you to go ahead with it any way. We did not bring it to our doctor’s until later and none of them were interested in the details anyway. Talk about nobody taking ownership of this. It has been all us all the way. I diagnosed my son with encopresis even. Thank goodness for the internet! So many of us on this forum have had the same experience as you. We have all gone to doctors looking for advice and most of us have found no real help that is how we ended up with Dr. C’s program. And so many of us have found success. As far as school, if you still think you can salvage your daughter’s experience at school, then there is still hope for you if you start this program right away. If you have to, I would encourage you to take her out of school for a week just to get a head start on it. Or even take her out for a long weekend to get started and trust that she will be OK when she goes back to school. Things were so bad for our son before we found this program that we pulled him out of Kindergarten. He had gone for six weeks and unbeknownst to us he was having accidents at school with poop falling out of his pants and on to the carpet (at half day preschool he had no problem making it through class without trouble). The teacher wasn’t even able to figure out which child it was and announced it at back to school night. I was devastated for our child. We tried to work with her and I was coming to school two times a day to take him to the restroom with a two year old in tow! Needless to say it ruled our day and our two year old had no life. We could do nothing all day as there was hardly enough time to run to the market, let alone squeeze in a nap. At a pediatrician appt, our doctor told me just to pull him out and give him some time. He said it was silly for me to have to go to school so often and it wasn’t good for our little one either. I was so relieved. He was right on with that advice, but still had no solution for the accidents. While I had my son at home I did lots of research and found Dr. C’s program. We were able to start the program during that year off of school. We started him the following year in Kindergarten again and it was smooth sailing. He had a great year. I have never regretted it for a day! Just wanted to share a bit of our story with you. I don’t want you to feel alone. My best advice is to follow the program to the letter and be patient. I would also encourage you to read through the archives of this list (link should be at the bottom of all of the emails) - there is a tremendous amount of valuable information there. Good luck and know that you and your child will be OK! Good luck and feel free to ask for help when you need it. This list is great for that! M. This
is a typical response by the more experienced parents reaching out to
those just starting the program. Also, note that this parent had a much
more difficult course for her child than many, but in spite of that she
experienced early benefits from the very beginning of treatment. I don't
want to give false impressions that the process is easy. This mother's
experience makes that very clear. I sometimes think that parents have
to reach a point of frustration where acceptance of the SS program becomes
possible. But do they have to go through these kinds of trials and tribulations
before even learning of the SS protocol? DrC. |
* * * * Received
02/06/200 T, A. Note that this is another mother who had to do a more extended application of the protocol, but she is so happy and has a wonderful sense of humor. DrC. |
* * * * Received:
02/06/2008 (yes, a busy day on the forum, and there were many more!) S. Don't make the mistake of altering the protocol, you will regret it. I think with the enlarged colon, the most important thing is not letting stool sit any extra time for a larger success later. It needs to regain it's elasticity, and being full is counter-productive to that goal. Pooping every day is essential to re-train his colon. My husband wasn't convinced when I started this program. His theory was that we should stop everything, leave our daughter alone, and eventually she would have to go. After three days in the hospital for a clean out, he reluctantly sat quietly while I started the program. He had to hold her for the enema the first day, and then washed his hands of the program. Since starting SS, she hasn't soiled (I don't even carry extra clothes anymore), her bad behavior is 95% gone, and she is so much happier. When I had to leave town for three days, my husband didn't follow the program. I came home to a huge set back, including an urgent care visit, because after five days back on the program she hadn't produced much poop. Once she was cleaned out, it was like starting all over. Now my husband is on board. He even gave her a suppository last week, and she reported back that he did a great job. We had our daughter tested for food allergies last month. I decided to wait a few months after she had a rectal bx for all the same reasons you have. She is allergic to wheat. I think going wheat free is making a difference. We have done SS since August, and even when she had a normal size poop it usually looked like a bunch of small clumps molded together. Now they mostly look normal, her stomach is soft, hasn't been hard and distended, and she says it is easier to poop. I feel horrible that she has had these problems since she was 2yrs old and no one ever suggested checking for a food allergy. After she was tested and negative for celiac, the idea of this being related to diet was ruled out. Getting tested can be difficult, but it is quick and once it's over so is the discomfort. If there are a lot of reactions, he might be itchy for a while, but not in pain. I think the skin prick is more accurate f or allergies than a blood test. If I had known a wheat allergy could cause intestinal problems, I would have had her tested before ever going to a GI. We still need SS, but hope to have quicker success now that she is wheat-free. Good
luck, Again,
this demonstrates that the SS protocol may not be easy up front, but so
many rewards follow from very early on that the parents follow through
to success. Also, the SS protocol helps to reveal complications which
may just be hidden in all of the confusion of the standard "top down"
approaches. I continue to be amazed at the strength of mothers in conducting
the protocol, it is so valuable if the husband is on board even if they
don't want to get their hands dirty! DrC. |
* * * * Received:
03/03/2008 Hello
All - Just wanted to say thanks for all the wonderful posts in response
to our little set back - had a good day today - praying for another good
day tomorrow. Note
also the reluctance to share the SS intervention with their physicians
because of the fear of a negative reaction. They want and need their physicians.
And I prefer that their physicians be available to them. I hope to ease
this situation somewhat with education and a "Letter to the Doctor"
inserted in the manual and contained on the home page of my SS website.
DrC. |
|
* * * * The general tenor of the above anecdotes from parents are quite representative of the exchanges I see everyday on our exclusive, free email forum for purchasers of the Clean Kid Manual. This exclusive email forum for parents has proved to be incredibly valuable in their sharing insights and support for one another. It also serves as a kind of natural "clinical lab" for me in observing the difficulties and breakthroughs that parents encounter with my protocol and their physicians. These observations will figure into a future edition of my manual. DrC-Dec, 2007 |
Home | Diagnosis | Encopresis Treatment | Enuresis Treatment | Program Highlights About the Doctor | Press Clippings | Scientific Articles |Relevant Links | Online Store |
||
 |
©
Copyright Soiling Solutions. All rights reserved. A Division of Behavioral Solutions EMail: bobpsy @ yahoo . com PO Box 293, Spring Lake, MI 49456-0293 616-638-1957 * 616-881-2882 * FAX: 616-850-8557 Outside of the USA request contact for free with "soilingsolutions" using Skype.com's internet telephony |
 |